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Fact Sheet #8 TOPIC: Advocacy Materials
Provided by www.familyvoices.org
- Family-to-Family Health Information Centers Brochure-pdf
- A description of Family-to-Family Health Information Centers, including contact information for centers in the states.
- "What Does Normal Mean?" Webpage
- The 60 minute documentary film "What Does Normal Mean?" follows seven students with disabilities through an academic year as they attend regular classes with their friends. Three award-winning documentary filmmakers visited elementary, middle, and high schools in urban and rural communities in New Mexico. The film-makers and the producers, two of whom have sons with disabilities, created a film that illustrates how inclusion can succeed and learning environments improve when school administrators, teachers, families, and disabled students and their friends work together.
- You Are An Advocate (12/04) (NAT3P)
Advocate-pdf
- A one-pager, written from one parent to another, on tips for being the best advocate for your child with special health care needs.
- Private Insurance: Managed Care Issues & Advocacy Managed Care-pdf
- Discussion of the issues involved with managed care programs and a brief guide for parents on how to advocate within your health plan for services for your child with special needs.
- Friday’s Child Newsletter (ongoing) (NAT4P) Friday's Child
- A weekly e-newsletter containing information for existing and emerging family leaders on topics such as leadership, mentoring, partnering and team building. Helpful websites, legislative updates, data bytes and FV-Talk summaries are regular features. Sent by e-mail every Friday to all Family Voices Network members, staff, board members, funders, key stakeholders and friends of Family Voices.
- Voices From Home-2006 Voices From Home 2006-pdf
| Voices From Home-hardcopy
- A 65-page report from Family Voices in the states about the status of health care programs and the activities of FV Network Members to help families of children and youth with special health care needs. Includes charts on partnerships and topic area involvement by state
- Voices From Home-2005 (NAT99H/P/C) Voices-pdf | Voices-hardcopy
- An annual ‘state of the state’ publication providing information about the activities and projects of the Family Voices network members in each state to help ensure family-centered, community-based, and culturally competent systems of care for children and youth with special health care needs. Contact information for all network members is also provided.
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For further information on any aspect of hearing loss contact your hearing aid dispenser or Hearing Loss Association of America - Delaware at 302-292-3066 (V/relay) or email hlade@comcast.net.
